In fairness, is this any worse than what Palantir will do with the whole countries NHS records? And they're being paid by the government to do it!
by greg_dc
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Apr 24, 2026, 1:10:10 PM
"Access this article for 1 day for: £50 / $60/ €56 (excludes VAT)"
Man, the scientific publishing cartel is something else. Note that author will generally get exactly £0 / $0 / €0 for his text.
by azan_
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Apr 24, 2026, 1:10:10 PM
There isn't much difference between giving this data to 20,000 researchers all over the world and simply publishing the data on the web.<p>I personally would like data like this to simply be published, together with a law that says using the data to make personalized decisions affecting those individuals is punishable with life in prison.<p>Basically, this data is 'opensource', but not for use to decide insurance premiums, job offers, or the contents of news articles.
by londons_explore
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Apr 24, 2026, 1:10:10 PM
Already being discussed:<p>UK Biobank health data keeps ending up on GitHub<p><a href="https://news.ycombinator.com/item?id=47875843">https://news.ycombinator.com/item?id=47875843</a><p>UK Biobank health data listed for sale in China, government confirms<p><a href="https://news.ycombinator.com/item?id=47874732">https://news.ycombinator.com/item?id=47874732</a>
by mellosouls
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Apr 24, 2026, 1:10:10 PM
Related: <a href="https://news.ycombinator.com/item?id=47875843">https://news.ycombinator.com/item?id=47875843</a> “UK Biobank health data keeps ending up on GitHub”
by WalterGR
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Apr 24, 2026, 1:10:10 PM
> Data for sale included people’s gender, age, month and year of birth, socioeconomic status, lifestyle habits, mental health, self-reported medical history, cognitive function, and physical measures.<p>If this is not traceable back to individuals, it would probably good to be made public. But I assume the UK Biobank only gives access to trusted partners since - as we know in our 'data analytics' day and age - with enough general data quantity you can trace back anything to anyone if you have the resources. And the capitalist-surveillance econonmy certainly provides the profit-motive.
by mentalgear
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Apr 24, 2026, 1:10:10 PM
I want to get my DNA digitized so I can do all sorts of health stuff for myself, but finding a place that won't leak my data is troublesome. 23andme is right out.
by fragmede
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Apr 24, 2026, 1:10:10 PM
That kind of data should be public anyways.
by scotty79
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Apr 24, 2026, 1:10:10 PM
Gonna wager the US government is the first to purchase
by Aboutplants
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Apr 24, 2026, 1:10:10 PM